A CO Tyrone woman has issued an urgent appeal to those who stopped her son's prescription of life-saving drugs to explain their decision after it emerged he has just 19 days of medicinal cannabis left.
Charlotte Caldwell from Castlederg appealed for a change of heart saying she fears her son could die.
It comes after the family's GP was warned by the Home Office in London to stop writing medicinal cannabis prescriptions for her son Billy, who suffers from intractable epilepsy and repeated seizures, with each one potentially lethal.
The 12-year-old boy used to suffer up to 100 seizures every day before receiving treatment in America, where doctors gave him cannabis oil to help stop the episodes.
His mother embarked on a campaign to allow him to be granted the drugs at home and when they returned to Co Tyrone, Billy was offered a prescription for cannabis oil on the NHS.
In April 2017, Billy became the first person in the UK to receive a prescription for medical cannabis when his GP prescribed the CBD oil - a derivative of cannabis that does not contain tetrahydrocannabinol (THC), the illegal component of cannabis.
He has been taking two drops of medicinal cannabis twice a day for 18 months and has had no seizures.
But Billy's doctor has been told by the Home Office he can no longer write any more prescriptions for the young boy, which Ms Caldwell said has helped keep him alive and well.
He has less than a three week supply of his oil left, with the family at a loss of what they will do after this runs out.
On a Facebook page, 'Keep Billy Alive', which was set up during Ms Caldwell's tireless campaign, the image of her son was last night captioned '19 days medicine left'.
Ms Caldwell said she wanted to contact the person who stopped the medication.
"Whether that individual be at the Home office or NI health department, this is an urgent appeal for you to come forward, contact us, meet with us," she said.
"We have a resolution not just for Billy but for all Billy's little buddies and persons who desperately need this medicine."
The Home Office said it was a "matter for the Department of Health NI to determine and consider any controlled drug licensing applications from companies and individuals".
The Department of Health said it did not comment on individual cases, but added that cannabis is a Class B controlled drug and has not yet been licensed in the UK as a medicine.
