THE family of the young west Belfast boy Dáithí Mac Gabhann have shared the “devastating” news he has been temporarily suspended from the transplant list over "unresolved issues".
Dáithí (6) is waiting on a heart transplant and was recently awarded the freedom of Belfast for his successful campaign to change the law on organ donation.
Posting an update on Twitter, the family said: “We have some news to share with you all. Recently, we received devastating information that Dáithí has been temporarily suspended from the transplant list due to a few unresolved issues.”
Calling it a huge setback, the family said they would not let it break their resolve.
“Dáithí's only hope for survival at this time is a heart transplant. So, what's our plan now?
“We're refusing to give up, and his team in Newcastle are determined to find a solution. Dáithí needs another operation to address these challenges and regain his spot on the transplant list.”
"Down, but never out"
— Donate4Dáithí (@Donate4Daithi) June 7, 2023
We have some news to share with you all. Recently, we received devastating information that Dáithí has been temporarily suspended from the transplant list due to a few unresolved issues. 1/7 pic.twitter.com/OMTPGg0udS
Thanking the “incredible community” that has supported them on their journey, that included the passing of Dáithí’s law, the family said they would now embrace the summer season with open hearts to create “unforgettable memories”.
“We're cherishing every single day, making it the most magical summer yet. We want to fill Dáithí's life with joy, love, and positivity,” they said.
The family are hopeful he will regain his place on the transplant list by the end of the summer.
"Thank you to each and every one of you who has supported us along this challenging journey. Your encouragement and solidarity have carried us through tough times,” they said.
“Remember, we may be down for now, but we will never be out. We are looking forward to a summer season of love, joy, and relentless determination. If Dáithí has taught us anything on this journey, it’s that miracles do happen.”
Read more
Six-year-old Daithi granted freedom of Belfast
‘Thank you, you have given me life again' - Moira woman on the gift of organ donation