Family of Co Down boy with rare brain tumour tell of 'searing pains in our hearts' following his death

Cameron Truesdale (13) with his mother Cassandra Finnegan

THE family of a Co Down boy battling a rare brain tumour have told of the "searing pains in our hearts" following his death.

Cameron Truesdale (13) from Waringstown died on Wednesday, surrounded by his family.

His family said last night he had "fought with all his might for 20 months after we were given nine months" following his diagnosis.

A pupil at Brownlow Integrated College in Craigavon, Cameron was diagnosed with the highly aggressive DIPG brain tumour in January 2017, which doctors said was inoperable.

DIPG affects just 30 to 40 children a year in the UK and Cameron was the only child affected in the north. Due to the location and type of tumour, few treatment options are available on the NHS.

But determined to give their son a fighting chance in life, the family learned of experimental clinical trials in Mexico and launched a fundraising campaign to bring him there.

Last year he was brought to Mexico to take part in the ground-breaking treatment, with his family raising £300,000 needed for the full 10-months of treatment through their 'Cure4Cam' campaign.

He appeared to be responding well to the treatment, but over the summer his health deteriorated.

In recent weeks, his family told of how Cameron's "health has declined over the last few weeks and we have just been fully focusing on giving Cameron everything he needs at this time".

But in a statement posted on social media, his family told of the devastating news.

"Wednesday evening a piece of our heart was taken and carried to heaven," they said.

"Cameron passed away surrounded by his family. He fought with all his might for 20 months after we were given nine months. He did this with more courage and strength than we will ever know.

"To the best son, stepson, brother, grandchild and friend.

"We will miss you more than anything but now you are free from cancer and you can rest. We will carry you in our hearts forever.

"We would appreciate everyone’s prayers while we try to cope with the searing pains in our hearts."

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